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I've just been diagnosed with celiac's disease. Can't eat anything with gluten from wheat, barley or rye. Turns out, there is hidden gluten in most processed foods. I have found a lot of good advice and support on various celiac websites, but I was wondering if anyone here had any experience or advice they could share. Thanks!

Co-winner of the "Likable Liberal" award who asks, "Can't we all get along?"

1 Corinthians 1:18-24 (CEV)
18 The message about the cross doesn't make any sense to lost people. But for those of us who are being saved, it is God's power at work.

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my Daughter has it also,, she is in Missouri. there are several support groups and One grocery store that give good info. If you google Celiac disease you will find lots of information. It is becoming very common.  You will need to really watch your labels. Also restaurant, ie; Taco bell hamburger has flour in it.

and Opie I am sure you consider your self funny. However it is a disease that is painful, and runs a person's food bill up a considerable amount. Maybe you need to get out of your conservative world a bit..

from a conservative

Thanks, 1130. They say that 95 percent of people with celiac are undiagnosed. Often people will go for years without symptoms, and all the while they are doing tremendous damge to their bodies. I have found out that Kraft Foods and Conagra (a huge conglomerate) are two companies who clearly show on their labels if there is any wheat, rye, or barley in the ingredients. (For example, if there is modified food starch, it will say in parentheses, from wheat.) But the best thing to do is just eat lots of plain meats, fruits and vegetables, and cut out processed foods altogether. 

Sorry to hear that ONO.  I noticed that Walmart had a section of packaged foods in the baking area that said gluten free. Maybe you could find something there.  Have you tried a health food store?

 

As for opie, if you have nothing intelligent to add, keep your mouth closed. And you are a liberal too, unless in your drunken stupor you forgot.

Originally Posted by O No!:

 But the best thing to do is just eat lots of plain meats, fruits and vegetables, and cut out processed foods altogether. 

That is excellent advice whether you have gluten problems, or not.  I believe we eat way too much processed foods.  

BTW, I believe you can have cornbread, but you gotta get straight corn meal from the grocery (Walmart has it ) and NOT cornbread mix or something like that. Can also use the corn meal to bread catfish. YUM !

B, the nearest Walmart is 60 miles from me, and I'm open 7 days a week so I can't go. The healthfood store has the same hours I do. The other day I had a friend watch the shop for a few minutes so I could run down and buy some gluten free bread (Six + dollars for a SMALL loaf!) But this morning I made some gluten free cornbread and it's really good. And I have a friend who is going to pick up some gluten free Bisquick for me the next time she goes to the food co-op.

 

I'm eating so much healthier now. For lunch today I had baked boneless skinless chicken breast, baked yam, broccoli, white cheddar, and some grapes. I ate a lot, and it had fewer calories than my usual piece of fried chicken from the grocery store with french fries and cookies for dessert.

 

I feel pretty good right now, and I know I will only feel better as time goes on and my gut heals.

Thanks Seeweed. I started typing the above post and then got customers so I had to leave off - that's why I responded to B and not to you. Great minds think alike on the cornbread. (Got the package at the healthfood store the other day.)

 

They say we should all do most of our grocery shopping on the outer perimeters of the store where all of the real food is, and stay away from the processed "food-like substances" in the middle aisles. This celiac might just be a blessing in disguise.

I LOVE living in the middle of nowhere, even if it is a long commute to the middle of somewhere!

 

I can't close the shop for a day because I'd be a nervous wreck thinking someone might be looking in the windows wanting to come in. Besides, I'd miss visiting with all my friends. Since Jay died, everyone seems to find their way in here at least once a day to soak up the residual "Jay-ness". His spirit is still (and always will be) here.

Originally Posted by Bob_White:

"After a few months gluten free and your gut heals, you can probably go back to eating gluten."

 

No, actually if you have celiac, you have to stay gluten free for life. If you go back to eating gluten, you will cause more damage. It's sort of like quitting smoking - if you decide after a while to just smoke occasionally, you end up going right back to a pack a day.

 

Chex cereals (Rice and Corn) are Gluten free.  Most steel cut oats are, too.  Most of the commercial made GF breads that you buy are dense and sticky and only worth eating when you toast them because the texture is all wrong...so save your money!  Ordering food from online sources is possible but shipping can be very expensive.  Amazon has a grocery section that you order $25 of accepted items you can get free shipping.  It would be to your advantage if you really miss these foods to take a GF run every few months to get supplies, but it is possibly to eat around it, it just takes patience and a lot of label reading.  Also there is a company called Bob's Red Mill that has products for making everything from brownies to pizza crust.  You can find them online.

Thanks, JA. I made it to the healthfood store yesterday and bought some Udi's bread. It's a bit co****, but not bad at all. I was talking to a nurse who is familiar with celiac, and she said one of the reasons I have such heavy fatigue right now, besides the fact that my body is using all of its energy to heal, is that I have been eating fruit early in the day. She said to load up on protein early and save the fruit (and carrots which are full of sugar) 'til later. She said that when you eat fruit it makes your sugar spike, then you have a rapid letdown that leaves you wiped out.

 

So this morning I had a couple of soft boiled eggs with some of the Udi's bread, For lunch it'll be roast pork, baked potato and broccoli, and then after supper I can eat some grapes and that peach that keeps calling my name. . I'll see if it works.

Asian groceries are a very good source for gluten free foods and ingredients.  They have rice flour, tapioca flour, potato starch, and lots of noodles made with rice.  There is an American company called Red Mills that makes gluten-free products of high quality, including a flour made from garbanzo beans,  fava beans,  tapioca and other non-glutinous plant sources.  One such grocery is in Nashville, on the west side of Nolensville Road a short distance south of the intersection of that road with Harding Road.  Another,  in the northeast Atlanta area, is called the Dekalb County Farmers market. It is HUGE and it is an adventure to shop there.  They have produce you will scarcely even see anywhere else in  this part of the country.

 

Some gluten-free flours need to be amended with xanthan gum to obtain desirable texture in breads and cakes.  Red Mills products usually include instructions as to how much xanthan gum to use.

Some users prefer NOT to use xanthan gum with cookies, however.  Depends on personal tastes, I suppose.

 

I do not have celiac disease, but a close friend does, and I shop for her occasionally, so I have gotten educated a bit on the gluten-free regime.

Originally Posted by Opie Cunningham:

You liberals are always whining about something. Gluten Intolerance sounds like another one of those made up maladies, like chronic fatigue syndrome.

You are WAY off base with that ignorant ASSertion, Opie.  Google up "celiac disease" and "gluten intolerance" and you will find that there is nothing imaginary or "made up" about this serious and inconvenient condition. Knee-jerk wingnuts like you need to do some truth seeking before you post inane stuff like you just did.

Thanks, Beter, um, I mean Upside. I've been doing pretty well with this diet, but I have found out I also am CORN intolerant. That makes things even tougher. Most gluten free breads have corn starch, and almost everything else has either corn starch or corn syrup.

 

I have just been eating whole foods. Meat. vegetables and fruit. And rice, lots of rice. But I feel better than I have felt in YEARS. My insomnia is gone, my energy level has increased, no more digestive problems, no more rash, no more "brain fog". I honestly thought all of these were just a sign of getting older. Now I know I was sick for the past ten or so years. And I feel a good twenty-five years younger now. This just might be the best thing that has ever happened to me!

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